The annual Strolling for Sickle Cell Fun Walk: Stepping Out for Sickle Cell returned to Kansas City, Kansas, on Saturday, Sept. 13, drawing more than 100 participants to the campus of Kansas City Kansas Community College. The event, now in its 15th year, served as both a fundraiser and a tribute—to families impacted by the disease, to the progress made in treatment, and to the life of Eric Uriel Kirkwood, whose fight with sickle cell inspired the founding of the local chapter.
The walk was hosted by the Uriel E. Owens Sickle Cell Disease Association of the Midwest. The chapter was founded shortly after the death of Uriel E. Owens, who passed from sickle cell–related complications in October 1980. It was established by Virginia Owens Kirkwood, Uriel’s sister, and her son, Eric, who also lived courageously with the disease for decades. Eric passed away earlier this year at age 65—a powerful reminder of both the challenges of sickle cell disease and the remarkable advances that have extended life expectancy for many patients.
Dr. James Birch, the board chair, noted the walk continues to honor Uriel’s and now Eric’s legacy while raising awareness and support for families living with the disease.
A Day of Community and Support
Beyond the walk itself, participants enjoyed a lively morning of activities. Children decorated hats and created plaques with sickle cell awareness messages. Adults joined in prize giveaways, and everyone came together over a shared lunch. For many families, the day was about more than exercise—it was about community, solidarity, and keeping awareness alive.
About Sickle Cell and Its Progress
Sickle cell disease (SCD) is a genetic blood disorder that affects the shape of red blood cells, causing them to harden and curve into a “sickle” shape. These cells can clog blood flow, leading to pain, infections, and other serious health problems. SCD disproportionately affects people of African descent but is found across all ethnic groups.
In the past, life expectancy for those with sickle cell was tragically short, with many patients not living past their 30s. Thanks to decades of research, treatment advances, and comprehensive care, that outlook has changed dramatically. Today, many individuals live well into middle age and beyond—Eric’s 65 years stand as testament to that progress.
New therapies, including gene therapy breakthroughs, bone marrow transplants, and improved medications, are offering hope for even longer, healthier lives. Research continues to push toward a cure, while community organizations like the Uriel Owen’s Chapter focus on providing education, advocacy, and direct support to families navigating the disease.
Uriel Owens Midwest
The Uriel Owens chapter’s mission is to increase awareness, advocate for patients, and provide critical support services. Over the years, the organization has hosted educational workshops, offered patient resources, and built partnerships with local hospitals and schools to ensure better care for those living with the disease.
Each September—recognized nationally as Sickle Cell Awareness Month—the group hosts its walk to raise both funds and awareness. Proceeds help support families and fuel the chapter’s year-round programming.
As walkers left the campus Saturday, many carried more than just tired legs. They carried renewed determination—to honor those like Uriel and Eric, to support those still fighting, and to step closer toward a future where sickle cell disease no longer claims lives too soon.
For more information about the Uriel Owens Sickle Cell Disease Association of the Midwest.chapter and its programs, go to sicklecellmidwest.org.
